Friday, April 01, 2005

Met with my congressman yesterday

I met with Representive Tim Bishop, My congressman. There was his aide and me in his office.

I first identified who I was. I talked about AFF and our aims. I detailed ABA and aversives. I spoke about JRC. I did bring a lot of paper printed from the web so he can refer to them later. I spoke about documented deaths at JRC and in New Jersey. I also had with a printed version of the nevada law regarding aversives. I spoke about how some states are coming to grips on the issue of aversives. I said there should be a national consensus on what aversives are and better oversight on places like JRC.

I found out he just joined the congressional caucus on autism. He also has a nephew that is an aspie. I mentioned that we are concerned with the fact NAAR and CAN is listed as some of the organizations that the caucus relies on. I talked about my protest last year at the NAAR walk. I also spoke about seeing his colleague congresswoman Carolyn McCarthy at the NAAR walk. I told him I contacted the autism caucus on more than one occasion and they never got back to me. I told him that is also the case for the parent group in NJ that is campaigning against aversives.

I also spoke about why we are not pro-cure that we are against an autism cure. I told him we felt that this cure movement is really a rebirth of a sanitized version of eugenics. I said that there are well meaning good people invovled who in our opinion just have not thought thru the implications. I spoke about the supposed cure movement for downs syndrome and its implications for an autism cure. I spoke about in the future who will be next ? the person that has a 50% risk of diabetes or alzheimers when they get old due to the attendant rise of health care costs.

He said he will go to the autism fair on LI NY this april. I spoke to him about the organizer of that conference christine heeren. Who defended Dr. hayley's comment as autism being mad child disease. I handed him a partial printout of the petition to defend the dignity of autistic citizens from Also I gave him a partial print out of the list at growlingjoel on the murders of autistics. I explained that society at large has a negative view. I handed him a print out an essay at raggedmagazine on the movie -"The US of leland". How the movie tried to portray the killer as sympathetic by casting the victim as an autistic boy.

He gave me a name and number of a person in his washington office. He said that person will contact me.

I thanked him for listening when I left.


Jess said...

Good work :) I hope that your efforts result in a new awareness for aspies and others on the spectrum. ^^

uphereinthetree said...

First of all, how well would the NAACP protect black interests and viewpoints if there were no black people at the NAACP? Put autists in charge of autists.

I doubt there are many NT sympathizers. Upon coming out as aspie to one of my closest friends, I got, "Why would you even want to live?"

Being hyperlexic and aspie, I was able to verbally respond to this, but what of all our counterparts whom cannot respond? It is difficult to expect empathy in NTs. They don't know how to socially respond to US so they wish us into the cornfield so as not to complicate their lives. They DO NOT have autists best interests in mind or at heart, though they may be unaware of their age-old genocidal tendencies, but the potential awareness sits underneath a hefty heap of denial. Everyone wants to see themselves as good, and the seeing is more important than the BEING. Anyway, I rant.